| Untagged | 25 Jul 2010 |
| Bingo! by Hayley |
Here's another blog for you to enjoy!!
This week, I went to the mall, and went school clothes shopping. That is any teenager's favorite part of summer. I can not believe it is getting that close to the school year, and then I'll be a freshman! Oh boy.
Friday and Saturday, I was busy holding another rummage sale. It was an ok weekend but it was so hot outside. But it was worth it I guess, because I got out of doing chores all day!
This week I have an infusion, I have my infusions at Legacy Emmanual in the day treatment center. I usually have treatments on Fridays because it's my mom's day off but they did not have any space open Friday so I'm going Wednesday. Wednesday are fun days at Emmanual, I feel. It's BINGO day. They play bingo on the TV and if you bingo you get a prize. So it will be a treat.
After my infusion treatment I feel real tired. I'm not sure if it's the medicine or just the process of getting a treatment. But I always fall asleep before my mom even hits the freeway to get home. The treatments do make me feel better for a few weeks. My body tends to get slushy feeling and I have pain in my legs. The medicine not only protects my kidney and other organs in my body but it does help with the fatigue and pain I feel from having Fabry.
My dad had a kidney transplant and my grandmother is still on dialysis waiting for a kidney match. She does not have a living donor at this time so she is on the national kidney waiting list. I pray my grandma get one soon. She has been on dialysis for almost three years now. My grandma and dad have fabry disease.
Well, I hope everyone is having a great summer.






