CCA Blog

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Untagged  25 Jul 2010
Bingo! by Hayley

Here's another blog for you to enjoy!!

 

This week, I went to the mall, and went school clothes shopping. That is any teenager's favorite part of summer. I can not believe it is getting that close to the school year, and then I'll be a freshman! Oh boy.

 

Friday and Saturday, I was busy holding another rummage sale. It was an ok weekend but it was so hot outside.  But it was worth it I guess, because I got out of doing chores all day!

 

This week I have an infusion, I have my infusions at Legacy Emmanual in the day treatment center.  I usually have treatments on Fridays because it's my mom's day off but they did not have any space open Friday so I'm going Wednesday.  Wednesday are fun days at Emmanual, I feel. It's BINGO day.  They play bingo on the TV and if you bingo you get a prize.  So it will be a treat.

 

After my infusion treatment I feel real tired. I'm not sure if it's the medicine or just the process of getting a treatment.  But I always fall asleep before my mom even hits the freeway to get home.  The treatments do make me feel better for a few weeks.  My body tends to get slushy feeling and I have pain in my legs.  The medicine not only protects my kidney and other organs in my body but it does help with the fatigue and pain I feel from having Fabry.  

 

My dad had a kidney transplant and my grandmother is still on dialysis waiting for a kidney match.  She does not have a living donor at this time so she is on the national kidney waiting list.  I pray my grandma get one soon.  She has been on dialysis for almost three years now.  My grandma and dad have fabry disease.

 

Well, I hope everyone is having a great summer.