| Untagged | 27 Jun 2010 |
| Summer's Here! by Hayley |
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Ok so here's another blog for the week!!! Ok first thing, was that school got out. YAY!!!! I had dance camp, which was pure awesomeness, except for the post camp pains. But my mom says that the pains will go away as my body gets used to using my muscles.
I went to the Oregon zoo last weekend and we walked through the new dinosaur exhibit, it was real cool, so I encourage all to go see it.
There is still a shortage on my medication. I was not able to get an infusion in June and I'm not sure if I will in July. I hope so because Fabry disease can cause chronic pain. I experience a lot of pain in my legs and my legs can go numb. My mom says I need to pay close attention while I'm at color guard practice so I don't fall. I have a motto when it comes to having Fabry disease. My mom and I tell each other this, " you can let this disease control you, or you can control this disease." I choose to control the disease and do what brings me happiness.
Another blog coming soon!!! ©Hayley
