Courtney Lowry
Courtney is an energetic five year old who loves peanut butter and jelly sandwiches, singing, Barbies and her kitty, "Butter." She's bright, cheerful and self-assuredly responds to others when they look at her physical condition with curiosity and fear. "Everyone comes in different shapes and sizes" is Courtney’s motto.
Courtney was born with Proteus Syndrome, a rare congenital disease, creating cysts that cover her body. She also has ongoing bone overgrowth. Courtney has bravely endured over 22 surgeries and is now unable to walk due to a tumor in her spine.
Though chronic pain has filled her 5 short years of life, Courtney keeps smiling. "The most remarkable thing about Courtney is her spirit and courage," says Courtney’s mom, Sheila. “The small stuff we complain about each day does not mean much compared to what she goes through.” When Courtney looks in the mirror, her condition fades away and she sees the face of a hero.
