Community Hero 2007
Syrus Tibbett
Syrus, 14, was born with an extremely rare congenital disorder, Nager Syndrome, of which there are only around 90 documented cases to date. For the first five years of his life, Syrus had to live with a breathing tube. He’s endured major surgeries, and has more to come. Syrus must eat through a tube in his stomach. And verbal communication can be frustrating for him sometimes because his speech is impaired.
None of this holds him back. His unwavering determination to achieve his goals is extraordinary. His family describes Syrus as a remarkable person who doesn’t worry needlessly. He confronts his challenges head-on and in the moment, then bravely moves on to the next hurdle.
“Syrus faces his condition with such dignity and grace. He reminds us all to be grateful in our day-to-day lives because he has had to fight for the simplest things like breathing, eating, walking, and talking,” says his mother Dawn.
Syrus finds enjoyment in listening to music. Hip-hop and rock ‘n’ roll make the top of his list. For Syrus, one of the most rewarding things about living with his condition is that he’s met some very famous people, including Cher, the Pussycat Dolls, and professional wrestler Triple H.
